Patient Centered Tools:
Adaptive Translational Science in Action
University of California, San Francisco's Vaccination Is Prevention Study required a novel approach to their patient journal: One that transformed an after-visit packet composed of easily losable pieces by our on-the-move patient population into a form factor that fit in a single pock. Thus was born the VIP Study Memory Crutch! With our sponsors blessing this total document transformation received review and approval status in record time by UCSFs fairly conservative CHR (centralized IRB)! Successful deployment led to Johns Hopkins University site requesting a version localized to Baltimore, Maryland. Patient first tools built from the ground up ensures excellent data retention. One way I bring form to unconventional requirements.
BEFORE TOTAL TRANSFORMATION: Bound for loss & poor data capture.
AFTER: Patient Journal as Zine; Mutually beneficial for patient & project!
A New Kind Of Patient Journal
When adaptive translational sciences means total document transformation: From loose after-visit patient journal handouts to actually useful after-visit zine they'll remember. No patient journal to track symptoms after investigative new drug administration before it looked this cool.
Population Informed
Utilitarian Design
Cover printed on thick cardstock for durability for 7 days of use.
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Front includes:
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Number of dose
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Subject ID
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Easy find phone number in case of serious adverse event to call day or night
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"Memory Crutch" illustration by Jason Storm
Back includes:
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Office address
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Days & hours of operation
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Integrated millimeter ruler for injection site monitoring and patient record keeping
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Prompts to call study site in case of
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Adverse event onset
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Questions
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Easy To Understand Instructions
Settings expectations in friendly language and addressing FAQs from the start.
Don't Forget To
Take Your Temperature!
How to interpret disposable thermometers, and best practices for measuring any swelling or redness.
Follow-up Appt Reminders & PublicTransit Details
Inclusion of past & future dates, follow-up appointment reminders, and transit route options to get from anywhere in the SF Bay Area to our office are cornerstone improvements. Patients without regular access to calendars successfully kept track of time between visits.
Transit localization for Baltimore's Memory Crutch was successfully completed through my diligent efforts due to the lack of familiarity and utilization of public transit by the Baltimore team.
Office Hours, Contact Info,
Millimeter Accurate Ruler
The importance of open lines of communication when working with homeless populations can't be understated. Built in ruler helps track potential adverse events. Duplicate highlight. Add to email subject line "I didn't skim" for a free 1 hour consultation when reaching out.
Take a look inside
Best viewed in fullscreen
University of California, San Francisco
Johns Hopkins University. Baltimore, Maryland
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Randomized Trial of a Vaccine Regimen to Prevent Chronic HCV Infection. N Engl J Med. 2021 02 11; 384(6):541-549. Page K, Melia MT, Veenhuis RT, Winter M, Rousseau KE, Massaccesi G, Osburn WO, Forman M, Thomas E, Thornton K, Wagner K, Vassilev V, Lin L, Lum PJ, Giudice LC, Stein E, Asher A, Chang S, Gorman R, Ghany MG, Liang TJ, Wierzbicki MR, Scarselli E, Nicosia A, Folgori A, Capone S, Cox AL. PMID: 33567193; PMCID: PMC8367093.
View in: PubMed View in: New England Journal of Medicine
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VIP Study: April 17th, 2018 CDC Grand Rounds, Working Together to Eliminate the Threat of Hepatitis B & C, Presented On YouTube and archived Slide Deck (Slide 51 of 72)
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"Memory Crutch" illustration by Jason Storm. All other formatting, illustrations, diagrams, and adaptation completed by GiGi Cavaleri